Thank you for visiting my blog! If you are visiting because you have experienced a pregnancy or infant loss, let me say that I am so very sorry. I started this blog shortly after our Baby Grady was stillborn on November 12, 2008. Please visit the sidebar below called "Labels" to find the topic in which you are interested, or just read as your heart desires.

Thursday, May 24, 2012

Tidbits from T & The Angel Babies 5K

Since it has been so long, I thought I would update you with a "Tidbit" post...

***The girls are officially out of school for the summer...YAY!  The unfortunate thing is that I've heard the words, "I'm bored" way too many times already.  We have no exciting plans this summer, so I'm afraid it's gonna be a LONG one!

***Matthew is all over the place and into everything!  Such a huge blessing but boy does he wear me out!  He still desperately needs a brace for his right leg/foot to hold his foot in position and stretch his achilles tendon, but insurance has denied it.  Why did they deny it?  Because he doesn't have a diagnosis of diabetes!  Is that not the craziest thing you've ever heard?!?!?  I guess a diagnosis of Cerebral Palsy isn't enough.  We are appealing this, and it's super frustrating!  The brace is $2,000 or we would just pay for it out of pocket.  The other thing is that when he outgrows this one, he will need another and so on. 

He still goes to physical therapy every other week, and we have just added occupational therapy every week to our routine.  He needs help with his right arm/hand and has some eating issues we need to address.  I can't say enough good about the therapists at Children's Healthcare of Atlanta.  I feel truly blessed to have their help with our little man.  We also had a speech evaluation recently, but they determined he didn't need it at this time.  We will reevaluate that in 6 months.

***Emma Grace turned nine in March!  I'm a terrible mom because I didn't do a blog post or wish her a happy birthday here on my blog.  Jessica is turning 13 this coming Monday, and I hope to get posts for each birthday done soon.  Jessica actually gets to spend her birthday at the beach!  She has been invited to go with a friend, and while I'm sad not to spend her special day with her, I'm excited for her.  I feel bad for Emma Grace, though, because she turned down a beach trip with one of her friends at the same time because she didn't want to miss her sister's birthday.  :(

***Gib is officially finished with his specialist's degree from the University of Georgia...YAY!  He is still working through the middle of June, and we will be happy when he is home for the summer.  He is super excited about a trip to Las Vegas with his brother and cousin in June.  I'm glad he's going with them because that's one place I have absolutely no desire to visit.

***I've been super sick with pneumonia.  They originally thought it was bad bronchitis, but it turned out to be more.  After three different antibiotics and a round of steroids, I'm finally feeling better.  I honestly wasn't sure I was going to make it at one point and just wished they would put me in the hospital for rest and IV antibiotics.  Apparently it wasn't bad enough for that, but it would have been nice.  I'm just SO thankful I'm feeling better!

I really want to take a beach trip by myself this summer, but I'm not sure that's gonna happen.  Everything is so expensive!  I'm trying to think of somewhere else I can go that is nice and relaxing, so if you have any suggestions, please let me know!  I just want a few days to relax, be selfish and do whatever I want to do!  :)

***The Angel Babies 5K went great a couple of weeks ago.  I ran despite being sick, which wasn't the smartest thing I've ever done, but I was determined to run for my boy in heaven.  I had a terrible time and the course was hard, but thanks to one of my BFF's, Jenny, she pushed me and encouraged me through the whole thing.  She could have smoked me but stayed by my side the whole time.  Thanks JC!  We had 20+ people as a part of Team Grady.  I appreciated each and every person who donated and/or took the time and made the effort to be part of that day with us.  Again, I'm SO grateful for my family of friends, and I'm SO thankful that family isn't defined by blood alone.  Here are a few pictures from that day...it was HOT!!!







 That's all for now!

Love,
Tonya

2 comments:

  1. I love you! I have missed your posts but totally get the busyness of life. Girl... I didn't realize you were that sick... Praying that the Lord continues to heal you quickly! I miss you friend. Would love to invite you here for a get away...but I know it would be far from anything restful!:) It was so good to hear some updates on your life... God's peace to you friend!

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  2. I don't know if it's in your area, but it might be well worth taking him to Shriner's. They would give you the orthotics and will replace them until he's 18. My son recently had to have his entire foot reconstructed. They had to remove bone, graft bone, and lengthen his heel chord, and prior to that had wanted him to have orthotics. Our insurance denied it too and the same reason, he isn't a diabetic. I was sooooooo mad. We were going to go to Shriner's but then they found all of the other issues with his foot and because he is in his major growth spurt (he's 15) they decided to do the reconstruction surgery instead. Get this, the surgery was $14,000. Insurance paid all but $865. The orthotics would have cost them significantly less. Strange!!

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